News

Patient Organisations from Across Europe Meet in Brussels to Present Their European Heart Valve Disease Partnership Manifesto to MEPs

BRUSSELS, 4 September 2018 - Patient organisations dedicated to helping raise awareness of heart valve disease, from France, Spain, The Netherlands, Italy, Ireland and the UK will be meeting with Members of European Parliament (MEPs) in Brussels to launch their European Heart Valve Disease Partnership Manifesto ahead of the first ever European Heart Valve Disease Awareness Day.

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Front Page Story In De Telegraaf A Major Publication From The Netherlands

A two page article about heart valve disease has been featured in a major publication in the Netherlands in the lead up to the European Heart Valve Disease Awareness Day. The article discusses their new Heart Valve Disease game that is being released for primary care professionals and the importance of stethoscope use across the country. The feature also includes a patient story about Ans Spronk, whose life was saved when her heart valve disease was detected by a stethoscope examination. Here is a full summary of the article:

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The Final European Heart Valve Disease Awareness Day Summit Planning Meeting: Amsterdam

On 10 August the European Heart Valve Disease Awareness Day partner representatives met for the final time before the launch of the day on 8 September. The summit meeting, this time held in Amsterdam, was a full day ensuring that all of the details were finalised.

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Save the Date: European Heart Valve Disease Awareness Day: The Power of Positive Ageing with Heart Valve Voice – 8 September, London

Heart Valve Voice UK will be hosting a patient focussed summit around the theme of The Power of Positive Ageing in honour of the first ever European Heart Valve Disease Awareness Day on 8 September in London.

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Save the Date: 1st Heart Valve Disease Awareness Days with the Alliance du Coeur – 5 to 7 September, Paris

In France, the Heart Alliance is committed to raising awareness among French population about heart valve disease, where still too little is known!

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Save the Date: Symposium For Heart Valve Disease Awareness – 7-8 September, Nijmegen

The team at Hart Volgers has brought together two partners Radboudumc and ISALA heart centers to help support the Heart Valve Disease Awareness Day celebrations in The Netherlands. Patients, doctors and policy makers are invited to a national Heart Valve Disease Awareness Symposium to be held on September 7 in Nijmegen (Radboudumc) to put our 4A’s on the agenda.

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Save the Date: Gymkhana For Heart Valve Disease with AEPOVAC – 8 September, Madrid

Heart valve disease is still very much unknown amongst the Spanish population and this is especially amongst those who are 60 years of age or older - the age group facing the highest risk of being diagnosed with this disease.

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Save the Date: Run With Cuore Italia At The “Martian Mission” – 13 September, Milan

Join the team at Cuore Italia on the 13th of September at 6.30 PM near the Fountain of Piazza Castello in Milan to run or walk at the “Martian Mission” for Cuore Italia, as part of the celebrations for the European Heart Valve Disease Awareness Day.

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MedTech Week 2018

From the 4-8 June, MedTech Europe organised MedTech Week to promote innovative and life-changing technologies across Europe. National medtech associations and organisations across the continent were encouraged to hold events and support the week through their communication channels.

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European Heart Valve Disease Awareness Day Planning Session

On 7 May members from the steering committee for the European Heart Valve Disease Awareness Day travelled to Switzerland to meet. The meeting was arranged to discuss and plan the upcoming awareness day and review each of the participating country’s plans for commemorating the day.

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